作为最常见的侏儒症类型，软骨发育不全（ACH）过去很长时间无特效疗法，直到2021年，“孤儿药之王”BioMarin研发的Vosoritide，作为首个获批药物，才开启了药物对症治疗时代。凭借独家优势，其2025年销售额高达9.27亿美元。
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The solution is not to install packages manually with rpm-ostree but to always go through generating a new OCI image with the desired packages. This keeps a consistent state between the image and the deployed system. Let’s generate a new image with cowsay and push it to Harbor so the update service can retrieve it.